Tuesday, March 29, 2022

Update from NC - His fight is over

Hello,

Last week went even worse which is why I have it as his fight is over.

Saturday afternoon it was so nice out I thought we should take a short walk at a nearby park. Tom wasn't feeling very good so I thought some fresh air would be good for him. I got him out to the sidewalk & brought the car over. He said......"Lori, take me to Atrium, I'm not going to make it." My heart immediately sunk & I ran back to the room to get the bag that has all of legal documents I have to carry with me at all times & then ran back out to the car. We drove the 5 minutes to the hospital & got him in fairly quickly.

The doctor ordered a chest CT to check for blood clots. One showed up & an unpleasant surprise. Tom asked the ER doctor, tell it to me straight....what did you see in the CT scan? The Dr said that his lungs are destroyed. Even if we were able to heal everything else in his body, the lungs can't produce the oxygen needed for the body to live.

We looked at each other with tear filled eyes & said please give us a minute. We both cried long & hard. He called his parents & his brother. I called our son while he was getting an ultrasound done of his legs to check for other blood clots. And we called our daughter together.

They transferred via ambulance from that small hospital to a bigger one 30 minutes south in Charlotte. We've been in a holding pattern while they try to figure out a way to get us home. Since he needs 4 liters of oxygen just to keep his stats up, he needs continuous oxygen. They estimated it would take 17 tanks of oxygen for the road trip home. That canceled out that. We are hoping to be on a commercial flight back to Iowa either Wednesday or Thursday. Some of our brethren from our fellowship group are going to drive our vehicle back along with our stuff in 2 different vehicles.

An air concentrator has been delivered to the house & hospice is getting set up for in home hospice.

This is not the outcome we wanted. We are still hoping for a miracle as they can & do happen.

I'll post more on Friday after we get home & get settled back in our home of almost 25 years.

Until next time,

Lori

Friday, March 25, 2022

Update from NC- this week was rough

Greetings from NC,

Sunday we had a date again. We went to a place in Charlotte called Bang Bang Burgers. They serve their burges on a wooden plank & the fries are placed in a paper envelope in a wire basket. The food was ok, nothing spectacular. We went there because they had grass fed burgers but not worth the $32 plus tip we paid. After we got done eating we went to a Walmart. Tom was able to walk from the parking lot into the store, all the way to the back of the store, to the front & out to the parking lot without his rollator. This is a HUGE improvement. He had to stop a few times to rest but was able to walk.

Saying Monday morning was rough would be a bit of a understatement. Tom was running to the bathroom every few minutes to urinate. A couple of nurses said he might need to go over to the hospital to get a catheter to drain his bladder. I wasn't totally thrilled with this idea & neither was Tom. He urinated about 3-50 ml at a time every few minutes. This isn't a whole lot if you really think about it. About 10:30 Monday night I took him to the ER to get some relief. They did a quick ultrasound & it showed about a liter of fluid. A male nurse put a indwelling catheter in. (this is one that stays in & drains into a bag) The male nurse didn't use any lube when he put it in. Tom was holding my hands as he did it, my hands were slightly crushed & his cries of pain really tugged at my heart. The valve was opened & the bladder started draining. Once the bladder was drained it showed 1.5 liters. They took a small amount to look for an infection which fortunately came back negative. It was a very painful night for him once we got back to our hotel room. He tried sleeping in the bed but ended up trying to sleep in the recliner. The positive side of Monday was that he weighed 188 lbs.

He saw the office chiropractor today too. He took X-rays & they showed us a few things. One thing it showed was that Tom has a mild curvature of his spine, meaning Scoliosis. It's not beyond help but we have to be careful with adjustments because of his physical condition. The x-rays also showed no cancer in the spine except for one small questionable area, the same for the pelvis. This is giving us hope.

Tuesday morning came with still some pain but he is slowly figuring out what it feels like to have a empty bladder again. He said he hasn't felt that in years. He's also figuring out how to walk with the bag attached to his leg. He filled the bag 3 times today, that's 1500 ml. He was shocked. The blood work came back from Monday's draw. His liver function is normal. This is fantabulous news considering his liver was affected by the cancer. His blood work also showed his PSA has come down. This is HUGE, it shows that treatments are working.

Wednesday was another rough day. The catheter that was placed Monday is causing him a lot of pain. He's figured out how to walk with the bag attached to his leg but he is still using his rollator to help him get around longer distances. He got thru most of his therapies today but skipped out on the vibrating table because of the pain of the catheter. We normally leave the office early on Wedesday's due to the Aarsota shot but today was a longer day for a Wednesday. He started to have a reaction to the shot within 30 of it. He started to have extreme fatigue & being really sleepy. His fever started about an hour later. Currently, it's sitting around 100.0. The pain from the catheter really took it out of him, he was a shell once again. Tonight he decided to take it out himself. We were able to undo the screw with a sewing needle & deflate the balloon that was holding it in place. He is almost back to his normal self again. We did call the hospital to ask if urine that was a dark, bloody red was normal & they said no. They recommended he come back in. But one of their favorite things to do is admit him & get help for him tomorrow. Which would have meant missing a day of treatment in the last week of the 1st round of treatment. We didn't want that to happen so the decision was made to do it ourselves. He had some pain but not as bad as when it went in.

The pain was so bad from the catheter tonight that the enemy got into his head. He asked me tonight......"Lori, if I don't make it, will you be ok?" My heart sunk, I tearfully shook my head no. I tried to get the word out but it just wasn't there. This is the first time during this whole ordeal that he even thought this way. He said after I said no, "then we have to win this battle, there is no other choice."

Thursday started out good & ended ok. We went into the clinic like we normally do. He got thru the usual initial stuff then went right to Rasha. Shortly after Rasha he had a meeting with Dr. Sara. He has some anxiety stuff about breathing since having two bad experiences in the hyperbaric chamber. Dr. Sara told him he'll get thru it & gave some pointers on how to lower that anxiety about being able to breathe. In the afternoon, we met with Dr. Jane. We went over his labs & a lot of his numbers are looking good. His PSA is continuing to come down as is his Ferritin level. Both Dr Sara & Dr Jane were concerned about him removing his catheter Wednesday night. They wanted him to see his primary today. We tried to schedule it but they said they couldn't help him with what needed to be done & told us to back to Lake Norman which was a quick no. They recommended 2 other hospitals in Huntersville, one was only a 5 minute drive from our hotel. The ER doctor tried several times to get him to take a Foley catheter which was retorted with a "Not an option." We finally were able to get a catheter that could be inserted & removed. The ER doctor came in & talked to us about the diagnosis in which she was shocked that we found out about it so late & really shocked in the treatment we received at Lake Norman hospital on Monday. She highly recommended that she admit my husband. She said he could have heart issues, kidney issues or liver issues going on. We declined & decided to continue with our idea of self catherization & be super careful to avoid an infection. He was given a dose of Lasix to help drain the fluid off his legs & feet. He was also given a prescription for 3 Lasix pills to take over a period of 3 days to help drain the fluid off his body. He is going to be pee'ing like a race horse so we have to make sure he keeps up with the self catherization or his bladder will become overly full. She also recommended he wear compression hose that goes all the way up his legs. It was a struggle but we got them on him. He looks kinda funny walking around with them on. At one point when he went to the bathroom tonight some dead tissue came out. In the ER I was squeezing his legs to move the fluid out of them & towards his bladder. It was so weird to see his legs & feet get smaller between my hands.

Friday started out good, went bad & ended good. He woke up early this morning by sleep walking. I'll never understand this disorder. I talked to Dr. Sara today & she said it's completely normal with his body doing so much regenerating & his mind working thru past things with family members for a total healing. She said not to try to wake him but keep him safe, try to guide him to a chair or the bed so he'll go back to sleep. He started with enough energy this morning, he got thru his therapies & we got instructions on when to come back next week to get his lab work done before heading back to Iowa for 2-3 weeks. We left Dr Buttars office feeling very positive & with energy around noon & then headed to the office of his primary physician. She wanted to see him before we headed back to Iowa. His primary doctor & her nurse were both shocked at how he was treated at Lake Norman hospital. No numbing gel & no lube to put in the catheter, the nurse said that was barbaric. He said his pain level was a 9 the whole time it was in. It changed his demeanor & his attitude. They tried to work with a urology office but the urology office were more worried about getting paid than they were about patient care. They said they couldn't take our insurance. His primary's nurse was able to get some sample disposable catheters ordered for us & will be here on Saturday. They are also trying very hard to get him into a urologist before we head back to Iowa. He was supposed to get in a day or two after the ER visit. Tom was losing energy quickly this afternoon at the doctors office. He laid down to snooze while his primary doctor, her nurse & I worked together at the nurses station to try to get things worked out. I told his primary that it was too bad she was in NC as I liked her & I would love her as my primary. Her response was......anytime. She told me that she was surprised they didn't admit him. I said they tried but it involved another Foley catheter & he wasn't going to go thru that again. She didn't agree with our decision but respected it. After the samples were ordered & got the info we headed back to the room. I was able to get him to rest for a short time while I ran & got a few groceries. He finally napped for about 20 minutes after 5 pm. He still wasn't feeling good when we ate but after going to the bathroom & resting a bit more he was finally feeling better. And spark has returned to his eyes. I got him some extra strength Melatonin to give him tonight to help him sleep. (And hopefully NO sleep walking)

I got some ozone therapy this week along with Chelation. I also got the results of my Chelation challenge that involved giving me IV fluids to move out the mercury & other heavy metals. My lead level was off the chart as was expected since I was around leaded gas as a child. I also have many radioactive materials in me like Cesium, Thorium & Uranium. My zinc, copper, iron, manganese & cobalt levels were also very high. They thought the copper level was too high but copper levels helped keep gray hair at bay later in life. I found my first gray hair this week. (sigh) Many woman my age have a lot more gray hair. I got the chelation on Wednesday. Around 8 pm Wednesday night I started to feel sick. My first thought was, I don't have time to be sick. My fever topped out at 101 & I hurt all over. If you've ever been in a car accident & the next day it's hurt to even move, that is what is felt like. Tom wasn't feeling good after his Aarsota shot, so we talked away most of the night. I talked to the nursing staff the next day & they said it was totally normal to feel like that especially if I have a lot of heavy metals. I guess I'm in for a fun time when we come back for Round 2 in April.

But the best news of the week is that we get to go home next week! The plan is to start heading home Wednesday after he gets some blood work done. He is going to be keeping his PICC line so they are going to need to send bandages home with us along with flushing kits so I can flush his PICC line daily. I'm also going to need to drain his left lung as needed. He'll also need to drain his bladder as needed until his prostate either encapsulates the cancer or the cancer gets bigger & then dissipates. The next round will tell the tale. We'll be home for 2-3 weeks before coming back to NC for another 4 weeks of treatment.

Until next time,

Lori

Friday, March 18, 2022

Update from NC-Its been a rough week

Greetings from NC,

I normally start the weekly update on a Monday on his first day of clinic visits but I'm going to start on a Sunday this week.

On Sunday, Tom felt pretty good, in fact it was day 3 of a 4 stretch. He felt so good that went to Outback steakhouse for a late lunch. He ordered the grilled chicken along with the fresh veggies of the day - broccoli. His favorite - not. He also drank 2 big glasses of water with lots of lemon in it. He packed away a good lunch. I was very happy with him. He had spinach with mozzarella cheese on it for supper. We were trying to build up his iron level for the blood work the next day.

Monday morning came & he was once again happy & cracking his usual jokes. He was making everyone laugh at the clinic. He got thru all of his therapies & IV's with no issues. He was making wise cracks while on the lymphstar vibrating table. He ate a good lunch there. Towards the end of the day he started to slow down & not be so talkative. I figured it was from the long day at the clinic. I was hoping & praying that the good streak would continue. I drained his right lung & got 750 ml out of it. This is a LOT less than we normally got out of it. I then drained 1,000 ml out of his left lung. We waited to drain his lungs in hopes that his bloodwork would come back good. When we drained the right lung, something happened at the top of his shoulder & he had a nerve that got pinched one way or another.

Tuesday morning came & it was bad. He had zero energy & wasn't feeling good at all. I helped him get dressed. He struggled to get out the door. I dropped him off the clinic doors & he struggled just to make it thru the doors to wait for me at the elevator. My heart was sinking. We got into the clinic & he couldn't even stand for weigh in. We wheeled him on his rollator to Dr. Sara's office. There we got the news that his hemoglobin had dropped to 8.2. We could no longer avoid it, he had to get blood in order to fight for his life. He broke down into tears at the news, he said "I've fought so hard." We got into quite a disagreement about him getting blood but he did what he felt was right for him. The right chest drain was also causing him a lot of pain so Dr. Sara ordered a chest xray to check the placement. The xray showed the placement was correct but for some reason it was causing him a lot of pain. He didn't sleep very well this night, he woke me up every 15 minutes from about 3:15 on. He was afraid to go to sleep since he was having such a hard time breathing.

Wednesday morning started with a 8:30 am appointment at the hospital to get 2 pints of blood. They said he would start feeling better after the first pint, he felt a bit better but not really better like they said. We pleaded for me to give him blood but the Red Cross has dropped it's policy for family members to give directed donations to family members that it's resources are best served using community blood. We don't know if the blood he received was from a vaccinated person or not. I'm going to see if I can find out by using the serial number from the blood bag. Shortly after one, we met with the surgeon that put in his right chest drain. He showed us the xray & the placement was correct. And explained why it might have caused him shoulder pain. We went over the clinic for him to get is Aarsota shot. We left & came back to the hotel. Shortly after we got home, Tom started to have intense pain in the area of the drain. We called the hospital back & requested to talk to the nurse that has helped with his drains. We told her he needed to get it out stat. The surgeon said he needed a doctor's order to take it out since it took an order to put it in. We quickly called Dr. Sara & got the order in. However, they weren't able to schedule the removal until the next morning. Another night of very little sleep ensued from the pain of the right chest drain. He didn't have much of a reaction to the shot so we are a bit disappointed

Thursday morning came with another early morning at the hospital. The outpatient staff know us by name. They come over & get the paperwork from us instead of us going to them. His cancer story is all over the hospital. Even more reason we are going to beat this! We made our way back to radiology & from there we went back to the cath lab. The staff were nice enough to let me go back to that area with him. The surgeon did an ultrasound of his chest to see how much fluid was in the right chest area. There was 10 ml at most. The presumption at this point is that the right lung has stopped producing fluid. It didn't have to be drained until almost a month after his initial diagnosis on Jan. 23rd so it would make sense that it would stop first. However, his left lung had a lot of fluid on it. The one nurse got the equipment to drain his left lung. We drained off 1.5 liters. They prepped him to take him across the hall to the cath lab to remove the drain but a possible heart attack patient came into the ER. We waited about 30 minutes & they decided to take him to another radiology room to remove the tube. They took an xray & more ultrasound & it showed the right lung was empty of fluid. Tom told them to go ahead & remove the drain. If it accumulates fluid, we will either set up a thoracentesis or have another drain put in sometime in the future. When he came out of that room, he looked & felt MUCH better. His whole demeanor changed. He didn't get much sleep again tonight. His mind was playing tricks on him that he couldn't breathe & he couldn't sleep well as a result of the mind tricks. We met with Dr. Jane today to go over his test results & his cancer panel. Some numbers are looking good & some not so good. There is more treatments to come. We found out today that he comes back 2 weeks after the end of round one for round two. I asked to come home for a short time. We've been out here since Feb. 6th. He said he would think about it.

Friday morning came with renewed energy. He got up early.....too early. We got to the clinic early since it closes at noon on Friday. He got thru weigh in & they took some blood to check his CBC. We won't know the results until Monday. He got done around 11 am. They tried to get him to do a hyperbaric chamber treatment & he quickly declined. They told him it would be good for him but he still said no. When we got back to our room, he said we can throw some of our stuff into storage so we don't have to haul it back & forth between NC & Iowa. I asked.....Does this mean we are going home? He tearfully told me we are going home. We reserved a small storage unit just a few miles from our new hotel that is only 5 minutes from the clinic. This will keep our little car from feeling over crowded. On our way back from checking out our new hotel & checking out storage units, the weather started to change. Tom's hip that hasn't bothered him for weeks started hurting. He limped from the car to the room when we got back to the hotel. A pain pill & a hot bath helped with the hip pain. He even ate his steak dinner in the tub. I told him that if this was me fighting for my life, I wouldn't let my claustrophobia prohibit me from getting in that chamber. That I would do anything it took to fight for my life. He looked at me & said I just developed this, I'm going to enjoy it for awhile. I had to conquer my fear of elevators when he was first diagnosed to get from the parking ramp to his room on the 5th floor in the oncology ward. I'm hoping in round 2 we can get him back in the chamber.

They drew my labs last week & they came back as good enough do the toxin challenge. All of my numbers were in their ranges except for two. Those two areas that are too high are my Vit. D3 level & my Ferritin level. My Vit. D level was 149, the normal level is 30-100. Dr. Mayer Eisenstein said that anyone who lives north of the 37th parallel doesn't get enough sun for optimal Vit. D levels. I've been taking 50,000 IU daily since early December when I broke the fifth metatarsul in my right foot to help with bone growth. Dr. Eisenstein borrowed a chart from a Vit D council for his webinars. It looks like I'm pretty protected from most cancers.

My Ferritin level is high as well. It should be between 15-150, mine is at 261. Ferritin is the protein that carries iron in your body. Dr. Sara hasn't said anything to me about the test result being high so I'm not going to be too worried about it.

I did chelation again this week. I had an annoying headache that started late Thursday night & didn't go away until late Friday morning. I also got some Vit. C. Warning, if you get this, you are going to be cold for awhile. I was chilled for most of the day.

We are hoping to head to SC tomorrow for bible study with a group down there but it will depend on how he feels tomorrow.

Until next time,

Lori

Saturday, March 12, 2022

I'm furious

Greetings from NC,

I'm just going to rant this time like I do from time to time.

I'm furious at cancer. I'm seeing my husband fight with everything he has to live. He told me this morning it would have been easier to die, he was that close but he is fighting so I won't be alone & he is fighting for our family. He is fighting for our bible study group.

I'm furious at our local medical community that failed us! Four doctors on five different visits missed this! They kept saying it's just pneumonia, here are some antibiotics & sent us on our way. One doctor prescribed him two antibiotics at once, insisted that he needed to be scoped & said I'll see you on the 26th for a chest xray. (which was 3 weeks away!) If we had waited til the 26th, my husband would have been taken by ambulance. My husband had a cough & fevers that wouldn't go away & he thought he needed to be scoped. I had to take him to an ER 20 miles away in order for a doctor to see the seriousness of the situation, order the right tests & give us the diagnosis he didn't want to give but what we needed to hear in order to know what we are dealing with. The local medical community cost us 10 precious months.

This same doctors office had the audacity to call us last week & ask why my husband hadn't taken the colo-guard test yet that was requested the end of December. Mind you, this test was $700. I calmly told her what was going on & be sure to convey the message to said doctor that wanted it done. It took everything I had to keep calm & collected when I really wanted to jump down her throat. When I was off the phone, I was so upset that I was shaking.

I'm furious with the insurance company for rejecting our referral. That it was patient preference over medical necessity. What a bunch of crap. It is medical necessity. He is keeping his immune system intact instead of being destroyed by chemo. He isn't being sick & weak from poison being injected into his body. He isn't having the complications of chemo. We are using a treatment that uses the immune system to fight the cancer. The insurance community is so uneducated & bought out by big pharma.

Scripture tells us about righteous anger. This is the only anger that is not sinful in nature. (Eph. 4:26)

Righteous anger- Righteous anger is typically a reactive emotion of anger over perceived mistreatment, insult, or malice of another. It is akin to what is called the sense of injustice. Righteous anger is considered the only form of anger which is not sinful, ex-when Jesus drove the money changers from the temple.

Until next time,

Lori

Friday, March 11, 2022

Update from NC - It's been a rough week but it's also been a good week

Greetings from NC,

It's been a rough week. But it's also been a good week. Let me explain.

Monday when we went in, Tom wasn't feeling the greatest. With cancer patients, there are good days & there are bad days. Monday was a really bad day. He went thru the usual daily initial stuff & then they put him in the hyperbaric oxygen chamber. He felt like he was suffocating. When he came out, he was really heaving to catch his breath. We went to the IV suite for him to get a bite to eat & rest a bit before his next treatment. He was continuing to have difficulty breathing. They then took him to the lymphstar room to work on his lymphatic system. They did the first round & he said he needed a minute to catch his breath.

One of the nurses then went & got the Oximeter. It read 86% with a pulse rate of over 100. They went & got their oxygen machine to give him some oxygen. After about an hour of sitting in the lymphstar room, they said I could run back to our hotel (about a 15 minute drive) to get a drain bottle or he could leave for the day. We opted to leave early & come back to the hotel.

I set up to drain both lungs of fluid. Now mind you, draining both lungs in one day is NOT advisable. Because if one lung collapses, you can run on one lung until you get medical attention. If both lungs collapse, you are in serious trouble. Fortunately, we were able to drain them about with no issues. Tom started breathing easier & his oxygen saturation rate went above 90%. This is a win for us.

We would like to not have to drain every day. We want his body to create a "dam" to stop the lungs from filling up. When we drain the fluid off his lungs, the body wants to fill that void. This also drains much needed electrolytes. This also knocks off some of his numbers. Cancer is a numbers game, you want some numbers high & other numbers low. Some of his numbers we are keeping a close eye on are improving so we are slowly winning the game.

We went back to the clinic Tuesday morning with higher spirits & hoping for a good day. He told the one practitioner he is no longer going into the hyperbaric chamber. There was two times that he was having a hard time breathing & he is scared to go in again. So, he is going strictly on the oxygen machine for the moment. He also did the foot bath today, again the water was black with foam on the top. More lymphatic drainage coming out of the bottom of his feet. He had a basically good day going thru the therapies with no issues. We did drain the left lung of fluid when we got back to the hotel. He felt better & rested the rest of afternoon.

Tom did something this night he has never done before......he did some sleep walking. He was asking weird questions, he turned on every light in the room telling me repeatedly to wake up. (I had less than 3 hours max of sleep at this point) He kept saying I needed to look something up for him on the internet, I got up & got to my computer & asked.....Ok, what do you need me to look up? His reply.....I don't know. (facepalm) He finally came around & realized what he was doing & started to act normal. Well normal for him anyway. (lol)

Wednesday is the BIG day. He gets his Aarsota injection. What we didn't realize until now is that they use his urine in the shot. Not only from the initial collection he did last month but part of it is fresh urine from the day he gets it. The urine has the specific cancer markers for his cancer. The Aarsota injection tells the immune system to go find these markers & attack them. Last week, it took a few hours for him to have a reaction. Today, it was just a few minutes. He first started to feel anxious. He never feels anxious. The one lady said that it is the Aarsota working. Then three hours later, he started getting a fever. This is a good thing. His fever continues upwards & tops out at 101.6 & it lasts for hours. In fact, 36 hours later he still has one. This is a very good thing. He also had some chest pain but the staff didn't seem too concerned about it. His immune system is working over time to kick cancer in the back side. He slept a few hours when we got back to the hotel while his immune system worked over time.

Thursday was a good day. His fever continued into this morning. The staff at the clinic were very happy. They kept saying its a good thing about his fever continuing into the next day. He got thru all of his therapies just fine (no chamber). I even got to join him in the Rasha room. I wasn't able to listen but it was nice to catch a nap. Cancer treatments are not only exhausting for the patient but also for the caregiver.

We got a call today from McFarland Clinic in Ames telling us that our referral to Dr. Buttar's office in NC was denied. That after reviewing his medical records that it was patient preference instead of medical necessity for coming out here instead of following traditional medicine of Chemo. Wellmark does have an appeal process & I will be appealing the decision. Chemo would have only led to pain, misery & eventual death. Out here, he has a real chance at life without the sickness & misery of traditional treatments of chemo. (whether by IV or pill)

His fever from the Aarsota shot continued tonight & into the early morning hours of Friday. The fever lasting that long is a good thing believe it or not. You'll understand when I talk about Friday.

Friday morning came around early. Tom was up bright & early before sunrise. He felt good enough that he made his own breakfast. He is all smiles & being his smart alec self that I've missed the past 10 months. He walked into the clinic smarting off & bringing a smile to everyone there. He even started to rap a bit. It was a short day, we were out the door by 10:45. After we left the clinic, he felt good enough to get a haircut. He was getting pretty shaggy. He hasn't had a professional hair cut since college so he is looking pretty good right now. We feel that he has turned the corner in this fight. The next 2 weeks of his treatment should be different. His need for pain meds every eight hours has been reduced down to one a day or even less.

As I mentioned last week, Tom wanted me to get some treatments while we are here. After meeting with a provider, I've decided on Ozone blood treatments, Vit C IV's, chelation as needed after we get the results of my challenge back. The challenge is they gave me to two IV's, one was to rid my body of mercury & another for all other heavy metals & toxins. I then collected my urine for 12 hours to send in for testing. A small sample was put into a bottle to send in. That sample will be sent out on Monday. The provider recommended Ondamed & a host of other supplements too, but I declined those for now. She also recommended some home remedies. One is neubulizing collodial silver, peroxide & saline solution (contact lens solution) at 1 CC each twice a day. Using Neilmed to rinse out my sinuses. There are 3 fish gills in your nose that are the filter for air as you breathe in. Mine were swollen so this will reduce the swelling. This is very gross. Think back to when you went swimming & water went up your nose, that is what it feels like. Also, put peroxide in my ears to take care of the hardened ear wax & that may reduce the tinnitus in my ears. The chelation therapy should help with the tinnitus as well. I've reduced down the list of supplements from nine to two. Trying to keep up with Tom's supplements & mine would have been be too much. I start regular treatment next week.

That closes out this week, until next time.

Lori

Friday, March 4, 2022

Update from NC - Feeling Hopeful

Hello from beautiful North Carolina!

This has been a week of hope. My husband officially started treatments this week. I looked at a pic of him from the week before we got down here & looked at him today. The difference is between night & day. He is looking better already. My husband & I were just shocked at how he looked. His PCP & our local hospital said he had long haul Covid & to just rest & he would get over it. I'm so thankful that we went to another hospital & got the answer to what was REALLY wrong.

A typical day at the clinic starts like this - he weighs in to see where his weight is at. Currently he is about 20 lbs underweight, at one point he was 25 lbs under weight. He doesn't have 25 lbs to spare. He then goes around the corner to see in a chair. He had a PICC line put in on Wednesday. This allows medical personnel to access a vein anytime. Every Monday they draw labs to see where he is on his numbers. Three days a week they draw blood & treat with ozone. This puts oxygen into the blood. It will pass thru the rest of his blood & make it more healthy than what it is now. I'm already seeing a color improvement from what it was when they started last week. They then start one of many daily IV's that he will receive that particular day. He might get minerals, an immune booster, Vit C, glutathione or other blood boosters. They are unable to chelate him at this time because his iron count is not high enough. Chelation really takes a toll on the body & he just isn't ready for that.

From there, he heads to the hyperbaric oxygen chamber room. He removes his shoes & his belt. They then put a special hood on him to concentrate the oxygen flow. It looks something like the hood you see here. He needs to wear ear plugs as well to protect his ear drums.

This is his least favorite therapy. He is under pressure for 45 minutes & then it takes 15 to depressurize the chamber so they can open the door & he can come out. They tried to take him to a deeper depth & but he had a hard time breathing. So, they are keeping him at a moderate depth for now. With the cancer in the lungs & his lungs filling with fluid constantly, he has a hard time breathing sometimes.

Cancer can't survive in an oxygen rich environment. The hyperbaric chamber is very effective at getting oxygen into areas where it previously wasn't oxygen rich. A great way to give cancer its walking papers.

From there he goes to the lymphstar room. This therapy involves putting probes on various parts of his body to activate & drain the lymphatic system. They start with putting the probes on the center of this chest for 6 minutes, then to the back of his neck. Then on either side of the chest under the arms, then sometimes behind the small of his back, pelvic area & behind the knees. Each area is for 6 minutes. Once he is done with probes, he stands on a table that vibrates back & forth. The speed goes from slow to quickly. There are three different levels with level 3 being the most intense. His first day he sat for the first four minutes as he didn't feel he wasn't ready to stand so he sat down for the first 4 minutes. He then stood up & stood on the machine for the last six minutes. This drains the lymphatic system even more. There is more evidence of this later on.

From there he goes to the Rasha room. In this room, he puts headphones on & listens to sounds & music thru a crystal. The headphones need to put on a certain way. I don't know why this needs to be except for maybe certain sounds need to reach certain sides of the brain. This room last about 2 hours. He usually snoozes during this time but I'm sure the healing affects of the sounds are still healing. You can read about the Rasha machine at this link.

At this point, he either goes to the IV suite to finish up for the day or he might head to another room to do a aqua detox foot bath. He did one on Monday & we were totally surprised by what we saw. The water turned black & foamy. The foam indicates toxins draining from the lymphatic system thru his feet. The feet have the biggest pores so this makes total sense.

On Tuesdays & Thursdays he meets with Dr. Sara. At these sessions, she works on the psychological aspects of the healing. He was asked to talk about certain blood members of his family for 10-15 seconds each. His parents, his grandparents on both sides & his spouse or anyone else who had a significant impact on his life. A machine measures the intonation of a persons voice & any emotional response. It then develops a song to help you move thru any emotional issues you have with a certain person. He was able to move thru 2 people this week. When the machine says you are clear of a person, it plays a certain kind of song for you. This kind of therapy is called Evox. You can read about Evox at this link. Psychological healing can hold a person back from the physical healing that needs to take place.

One day a week he meets with Dr. Jane Garcia. She is in her mid 70s but is smart as a whip. She has also had lung cancer that was cured by the methods used in this clinic. We are very grateful to have her & it gives us hope that we are going to beat this. She asked him many questions about his health prior to the diagnosis, how we found out & she was very surprised that he had no symptoms prior to this indicating he had cancer in a very advanced stage. She adjusted the supplements he is supposed to take daily, added a couple of new ones & continued to work on the game plan on getting him on the road to recovery.

One day a week he gets an Aarsota injection. This is developed from his urine that he collected over a period of a few days to equal about 3 liters. It was sent overnight by Federal Express to a company in southern California to develop a injection. The urine has the specific cancer markers for his type of cancer. When this is injected into his body, it goes after the cancer. The stronger the reaction to the injection the better it is. This first go round he had chills, a fever that vascillated between 100.1 & 100.9, really sleepy & of course a sore butt where they shot it into him. As each week goes on, the shot will get stronger. Week 4 will be the strongest & the reaction may be bad. They require that someone go home with the patient & stay the night with them. This way reactions can be monitored & recorded. You can read about the Aarsota injection at this link. Another cancer patient talks about getting Aarsota injections to kick the cancer out of his body.

A few times a week, he gets Ondamed therapy. This therapy involves putting a collar around his neck that is attached to the machine & then a band around his midsection. It uses sound waves to heal the body. The first few days, they used the machine to find out what was wrong with his body exactly, wrote down the numbers & then use those numbers to tune the machine to work on that part of the body. The first thing that came up was that his lymphatic system is out of wack, followed by his lungs, digestive issues & an issue he never told anyone about....not even me. It showed he had a partially detached retina. This healed itself years ago. You can read about Ondamed therapy here.

After the first day of treatments, we came back to the room & he slept for almost 3 hours. The second day, he came back & laid in bed for a couple of hours & we just talked while he recuped. The third day is when he get the Aarsota injection. We came back to our hotel & he got in the tub for awhile. He was chilled & achy. He also slept sitting up in the tub. I gave him a bath while he sat in the tub & then he went & lied down for awhile. Thursday & Friday he actually felt pretty good when we got back. He was smiling & starting to act like him oldself. (More hope!)

He got a couple of pieces of equipment this week to help him. He got a rollator, which is a walker with wheels & a seat. He isn't having difficult walking but since the cancer is in his pelvis, it takes some of the strain off his hips joints. He also got a pillow to get his feet up when he is sleeping. When he is getting a lot of liquids during the day, his feet swell up. I got him some compression stockings as well.

I told him when we came down here that this was all about him. To get him well & to kick cancer out of our lives. Well, life had a different path for us. Many of you know I've had vertigo for almost 12 years. I had been symptom free for about a year. Last week, the vertigo returned with a vengeance. I can't lie down or get up without the world spinning. My two triggers are lack of sleep & stress. Guess what I have an overbundance of right now? (you guessed it) I've had tinnitus for the same length of time I've had vertigo. Back in December, it disappeared for a week. To hear nothing was a huge blessing but it returned later with a vengeance. I'd like you to turn on your TV, go ahead, I'll wait. Now turn the volume level up to 40, that is how loud a TV needs to be in order to cover up my tinnitus. So, my husband talked me into becoming a patient & getting some chelation therapy to maybe rid my body of heavy metals that may be causing the tinnitus. I have titanium pins in my right foot from a surgery that was supposed to make it easier for me to be on my feet longer.....it didn't. I also played in lead gas when I was a kid, helping my grandfather wash lawn mower parts with it & cooling my arms & feet off with it on a hot summers day. I know, so dumb by todays standards, but we didn't know back then. The paperwork is filled out & now I'm just waiting to talk to one of the Dr's to get started.

A few of the staff members said it's common that once you start treating one family member in their clinic, that the accompanying family member also gets some sort of treatment. That wasn't my plan but he insisted & told several staff members to get me the paperwork. I could get Vit. C, nutritional & some other simple stuff without becoming a patient "patient" but to get chelation, they need to check my blood to make sure I'm strong enough to do it. One nurse thought I was afraid of getting poked by the needle for an IV, I said no. I used to donate blood & I've been thru labor & delivery twice, fear of needles & IV's is not an option.

That will close this out for this week. I'll be posting an update next week on how things went. We want to show people that there are options. That chemo & radiation are not always the answer for cancer.

Until next time,

Lori